cancer – Live Fully Today Blog https://blog.livefully2day.com If not now, When? Mon, 03 Jan 2022 12:47:01 +0000 en-US hourly 1 https://wordpress.org/?v=6.5.4 https://blog.livefully2day.com/wp-content/uploads/2020/09/cropped-LiveFully2day-if-not-now-when_-Logo--32x32.png cancer – Live Fully Today Blog https://blog.livefully2day.com 32 32 The time I did not have Breast Cancer https://blog.livefully2day.com/the-time-i-did-not-have-breast-cancer/?utm_source=rss&utm_medium=rss&utm_campaign=the-time-i-did-not-have-breast-cancer https://blog.livefully2day.com/the-time-i-did-not-have-breast-cancer/#comments Wed, 06 Oct 2021 20:04:01 +0000 https://blog.livefully2day.com/?p=833 Continue Reading]]>

It was Sept/2012 and I thought I had already gone through all kinds of challenges and that nothing else would threaten my world. But of course it wasn’t the case… It was not yet the time to be sure of myself, strong, and with a confident self-image.

A bomb was dropped in my lap. My usually normal yearly mammogram came back with a Bi raids 4 – “suspicious abnormality on your breast imaging studies. A biopsy should be considered as a next step” – they tried to do all kinds of imaging but unfortunately it did not work. I had once again to go through surgery…

As soon as they said that, that very moment, I convinced myself that I had breast cancer. Watching all those women sitting around in an unfamiliar waiting room of the very same hospital I was so used to, has impacted me tremendously. Some were losing their hair, others lost it all already, a few were wearing scarfs beautifully shaping their perfectly round heads, elegant and purposely planned. Most of them did not have at least one of their breasts… and there I was entering a completely new journey I was not okay with, doomed by Micro calcifications no one could diagnose without once again cutting, checking and removing another piece of my body. 

My first marriage had ruined my self-image, my ex-husband was really good at pointing out all my imperfections and making sure I was aware and completely self-conscious of my body.  After I divorced him, it took me perhaps 10 years to rescue myself from down the heel and finally recover. 

As I was approaching a new positive self-image milestone, I was almost happy with myself, the way I looked, my general appearance, my body… and then this… 

-“Just in case, we will make sure we remove all the micro calcifications, instead of just biopsing” – Doctor Maria do Socorro explained to me. 

So what!? Why?? I thought… then you come back and even though you’ve got it all already, once it is confirmed, you take the whole right breast? What is the point… I don’t get it… I was so upset I could not rationalize…

The conversation in my head was so loud I couldn’t ask any question or even acknowledge her approach or decisions towards what to do with my own body, but just accepted whatever she said…  I walked out of her office – the appointment to understand the next steps, already mastectomyED…

The surgery day arrived and I had multiple and diverse fantasies I had created in my head. All of them were really bad… they would open and see “all those ugly things” and decide right there that the best thing to do would be to remove the whole breast right.  Another one would be that they would remove only the micro calcifications, but the damage done during the surgery was irreparable. This last one was based on my own experience at the Cancer hospital – because their focus is always to remove the “thing” they consider the problem, whatever it takes, even if you have to walk out of there handicap. 

I became a master in fantasizing “worst-case scenarios” and to me, they were real.

I was completely shocked with what I saw the day after the surgery, when I could finally “check” the result of their work and the impact in my body. The scar was a state of art, immaculate perfectly around the nipple curve, almost imperceptive. Except for the bruises, there was nothing visually depressing. It was almost a relief if I did not start focusing on the mystery of the pathology results. 

Another way too long unknown period of apprehension and expectancy. 

One thing that I most hated was the never-ending waiting time, either to know what was going to be the prognostic, what the doctor had to say about such and such image or test result or every time something went to be “checked” – the timeframe of pathological anatomy results. More time in my hands to live in depressing fantasy land and the fear of the unknown.

It was a couple of weeks before Christmas when I finally got to see the doctor again and finally talk to her, because even if I did before the general anesthesia took effect, I had no recollection of the fact. 

This picture was taken later that year 2012 at my ranch, back in Brasil with my now husband

This time my boyfriend was with me, American and just barely started to speak Portuguese decided to get into the doctor’s office with me and chat with the doctor, ask questions, next steps, etc. I felt cared for and protected and actually loved that he did. I remember sitting at the bed, the doctor examining me, and they two talking back and forth. There were moments I believe the doctor was talking directly to me, but the conversation in my head was way too loud and busy. I was having a hard time trying to make sense of becoming bald, wear a wig or not, hide with a scarf or not, would my head be nice and round as many women? what about my gigantic ears? everybody was going to make fun of me… I was going to look terrible… no one would look at me anymore – my long hair signature tale was over. What about losing the breast, the boyfriend, bringing my self-image back to the mud. If she ever talked to me directly, I have no idea what she said, truly. 

Then I heard “Bom Natal”, which means “Merry Christmas” and apparently it was time to leave, but I had no idea what just happened there.

My then boyfriend looked at me as we walked out of the office and mentioned” What a weird doctor!”. – Really? I asked… Why do you say that? Wasn’t it inappropriate of her to tell me that? – What do you mean? I asked. You didn’t hear!? He asked, shocked. She called me “Bonitao”, he nodded incongruently, not believing what just happened…

No, she didn’t. I corrected him. She said Bom Natal, not Bonitao. My sense of humor was numb. The grieving process was taking its course in my head.

I kind of felt he was trying to cheer me up with his usual corny jokes, but he actually thought the doctor called him: Handsome. My thoughts took over again. I was numbed and now frustrated, having no idea of my own prognostic. I was very low, devastated, but he seemed to be okay and in good spirits. We stopped at the “Casa do Pao de Queijo” still inside the hospital and ordered two coffees and a basket of mini pao de queijo – a traditional cheese bread brazilians die for it. I was having a relationship with my own coffee, the pao de queijo and my thoughts. Speechless, blinded. A thousand things coming to mind at the same time, I couldn’t stop them. I was devastated, I couldn’t see the positive in that, I wasn’t in the mood to talk, to be cheered up, to listen or to do anything, but just to  keep giving energy to the crazy negative thoughts that seemed to have taken over my ability to choose for myself, make decisions, or make them stop. Aren’t you happy!? he asked… Relief!? He carefully added…

-Me!? No. Why? Why should I be?  

-He looked at me confused, but very aware of the mining zone he was stepping into… 

I kept staring at my coffee, breast-less, bald, unloved, uncared, ugly, no self-image, tired of cancer and all the destruction it had already caused in my life. I thought I was a survivor, graduated, MBAed in cancer… a fortress, almost immortal. I thought there wouldn’t be anything that would bring me down, that I got it… but that one really played a role on me. Put myself back into the familiar and automated butchery material mode – no self-image. You are okay… he said, carefully spelling every letter in each word

-You say that because it is not you. Enough of this! I said angrily. 

-Honey, he called carefully, firmly and lovingly… did you hear what the doctor said?

-Bom Natal? I replied

-No, before that. Do you understand what is happening? He very gently started

-What? I tried to raise my head and look at him. 

-You are okay… he said very slowly and beautifully

-Even if you are okay with me without my breast, I am not, I said. I never thought this would affect me like this. I don’t want to go through this. It took me a lifetime to rescue myself from my marriage, my past and the way I used to feel about myself. I started crying, desperate.

He took my hands, looked deep into my eyes and repeated.

-Honey, you are okay, the results were negative. There is nothing else you have to do. It is over. You are healthy and I love you no matter what.

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Soul Mate https://blog.livefully2day.com/soul-mate/?utm_source=rss&utm_medium=rss&utm_campaign=soul-mate https://blog.livefully2day.com/soul-mate/#respond Thu, 19 Aug 2021 23:01:21 +0000 https://blog.livefully2day.com/?p=883 Continue Reading]]> A tribute to Stacie Chevrier

Today I woke up to a world with one less friend… How is that possible? I am devastated. I can’t believe it, I just can’t. She’s so young, beautiful, full of life.

So grateful her memory is alive in this video, because I really needed to see her once more…

I’ve been working on my business, generating content, talking to my audience, engaging with people and for a very long time, I haven’t been “me”. I don’t even remember when was the last time I’ve posted something in my personal page or interacted with people there. Yesterday evening my husband shared one of our precious moments together in our back porch listening to the rain and Adriana Calcanhoto https://open.spotify.com/track/4XXaIb6V1u0X5Ao2xzeotr . So this morning I decided to log into my personal account and take a look… sent love to lots of people, engaged in some comments and kept scrolling until I saw it.

This is the second time that Facebook tells me that someone I truly care about is no long among us. I am not going to get into how unfair and sad this is. The first time was my grandmother – which seemed to be a racing among my cousins as there was some kind of prize to the first place. That is how I learned about her death. unbelievable. unforgettable. unforgivable. Thank God I was able to release all that pain already.

I’ve been thinking about Stacie for some time and meant to contact her. I felt like she had disappeared and I missed her. I remembered sending her a voice message after watching a movie where the antagonist looked just like her.

“Hard to believe it’s just been one year since I lost my dear friend.” said the post from a common friend Christine Partch.

I used to volunteer at Gilda’s Club Nashville, conceiving and delivering workshops for people impacted by Cancer based on my survival journey. Their mail letter informed me about the Creative Expressive Writing at VICC – https://news.vumc.org/2015/09/03/new-creative-writing-course-geared-for-cancer-community/ sponsored by Vanderbilt. Aware of English being my second language, I accepted their suggestion to use those moments as some kind of therapy, journaling or whatever I want to reflect on. That’s were I met Stacie, sometime between 2015 and 2016 at the Curb in those wonderful classes facilitated by Anna Silverstein.

The stories we heard from each person that wanted to share whatever the prompt inspired them to write about were so beautiful, profound and heart felt. It was impossible not to fall in love with one another, know their true self and finally understand the concept of Soul Mate. We not only spoke the same language but also shared the same pain. Trying to get back to “normal life” after a life sentencing diagnosis and experience…

Stacie was always very elegant in her jeans, t-shirt, comfortable shoes, scarfs on winter, a cross body bag, her iPhone and the keyboard where she would type her way out. Each and every time she would share what she wrote, I used to be amazed. How in 20 min writing someone can come up with that!? I used to think. But she did, and she wasn’t the only one. Getting back into my writing from those times, except for the poor English, grammar, syntax, concordance, etc the depth and the ideas were inspiring.

We’ve shared many workshops together and she was very supportive of my writing. So many times I remember her telling me to focus on the writing idea and forget everything else. I used to feel less because I was a foreigner, but they were all so wonderful to me. It was all in my head, I guess, but it hasn’t stopped me.

After being in so many workshops I decided to walk away for a bit. Without communicating to one another, it seemed like we all shared the same thoughts. Spring 2019 I decided to get back partially and met a whole new group of people. They were also wonderful and lovely, but not the original group, but I decided to stay as I realized how much I missed. They were working on an Anthology and I proudly submitted a few pieces of my writing work. Even though the facilitator of the class always changes after a couple of seasons, it is a blessing to know each one of them and to see how in the world is possible to always have wonderful people leading those amazing classes. Lina was the one that time, she was moving to Texas and Vandy organized a reception where each person could ready their piece.

This was the last time we saw each other and talked

That was the last time I saw Stacie. May 2019, just a few days before her birthday. She wasn’t in the class, but published the incredible memoir of her pilgrimage to Santiago de Compostela – which I remember her reading the raw piece as she came back from the trip and sharing with us in class, back in 2016/17. The original piece was called: “When I die, call Kevin”, to me, it was love at first sight. I am not sure how many editions and when she decided to change the title, but it has been perfect from the first version as I walked with her in her words.

I was so happy to see her again, it brought back memories of a happy time, when I first discovered my passion for writing, our group, the support, the fun, the meals we shared, the unconditional love and support to one another. It was the first time I saw her with hair and I couldn’t help myself but to comment how beautiful she was also with it. She smiled and touching it at the shoulders length mentioned how much and fast it’s growing again… She read her piece and I went back to Spain with her once again, and to the classes at the West End Avenue over breakfast, in front of the Parthenon, where she first shared her treasure with us.

I left the bathroom this morning and couldn’t stop crying. I couldn’t believe it has been a whole year she is no longer in this dimension. I missed her puppies posts, her birthday donations posts on her birthday, her smile, spontaneity, authenticity, her angelic way of being herself.

It is not natural to see someone that young leaving. I still can’t believe it.

I found her everywhere as I was looking for comfort throughout the day and had to pay an homage to her. I am so grateful we’ve met, shared so much during our human experience. I can’t describe my state of gratitude for her legacy and how much she’s been, done and inspired us. I also stole a piece from her blog, written by her loved ones, which I second to the letter…

“Although she is gone, she is forever in our hearts.  She touched so many lives during her short time on earth.  Stacie was grateful for every life experience and viewed everything as a new adventure.  As she laid knowing the end was near, she said,

“I’m excited to see what’s on the other side.”  

Stacie Chevrier

May we all take a piece of Stacie’s grace, wisdom, optimism and enlightenment with us every day on our journey through life.  RIP Stacie. Forever Young.  Forever Beautiful.  We love you so much!

I told my husband about it all, back at the swing in our porch this morning and mentioned that voice message I left her, when I realized I’ve never checked it back, and then I did…

“Thank you Sheyla! So sweet to hear your voice.:)

Reflecting upon such a loss, I got inspired to share this video today as it has everything to do with the message I want to share with the world. I pray that it touches your heart & you like.

Don’t let it kill you, before you die

Stacie Chevrier
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